Five things you don't want to say to a woman with secondary infertility...

1) She needs a brother or sister - yeah, I tried to buy another one, but my card declined.

2) Well, at least you already have one - gee, what was I thinking trying to plan my OWN family and crap?

3) It saves you money - actually, it was a lot cheaper when I got knocked up unexpectedly and had a child at 24... infertility drugs are expensivo!

4) Just wait, your time will come - oh, I had no idea that what I'm doing now doesn't qualify as waiting

5) You just might be pregnant right now... you never know - No, I do know jack-wagon, because I have doctor's appointments at least twice a week and I'm sure they would have NOTICED if I suddenly had pregnancy hormones!

Oh NIH, where have you been all my life... well, for the last 4 months, at least!

 A while back, read about 4 weeks ago, I stumbled across a FB group for women with POF. I wasn't entirely sure whether or not I wanted to join because not everyone knows about my POF and I certainly didn't need it on my timeline every time I posted to the group! Either way, I thought my sanity has to be worth a little bit more than my pride! I need people who understand what I'm going through and can help me through this - and I want to help others if I can, as well.
Either way, I got the message that I was accepted to the closed group yesterday! Naturally, I did the obligatory intro post: Hi, I'm Anika. I have POF and I'm devastated. To my astonishment, people responded. Not that I thought they wouldn't, but it wasn't just "Hi Anika. Welcome!" It was more like "Did you do x? What about Y? You should also try Z... it's worked for a lot of us."
So, a couple of women there mentioned that even after FSH levels elevated into the hundreds, ok 102 and 108, I believe, THEY CONCEIVED. One conceived naturally and had the profile picture to prove it.
Now, I don't mean to go back into the denial stage. I am in 3 stages simultaneously, so to get out of one would be really awesome. However, THERE IS HOPE. Maybe not in my case, but in someone's case, there is hope.
So, one of the women also gave me the website to the NIH. NIH, I LOVE YOU! There is a center, 4 hours drive from my home, that deals specifically with POF. *cue the hallelujah music* I called today and they are accepting patients for September 2012 (which coincides with my  law school start date o_O). I am going to do this, though. I owe it to myself and my broken ovaries to get answers.
I will update once I've read through the introductory packet they've ALREADY sent me (talk about efficient).
Here's the link for your perusal. I will update once I take a look through all of the info.
http://poi.nichd.nih.gov/index.html

Yeah, the wind is definitely out of these sails...

When I first started my treatments for infertility, I did EVERY single thing they asked me to do: stand on my head, sleep in the bathtub, eat only ice cubes... well, they didn't ask me to do any of that, but you get my point. Well, in recent weeks, I've kind of "given up", which I alluded to in a former post. Further evidence of that can be drawn from the fact that I missed my appointment yesterday - AND, I didn't realize it until about 20 minutes ago. They asked me to come in tomorrow after I emailed them about the oversight and I wanted to say "can I just wait another week?"

I have a dark spot on my left arm, which seems to be the only arm with blood in it so they draw from the same exact place every time. I'm sick of being poked and prodded - awesome, more ANGER.

So, next appointment is set for tomorrow. I'll let you know how it goes!

5 stages of infertility grief

A friend asked me how I was doing and it forced me to think for a little bit. How AM I doing? The answer is not always clear-cut. Some days are better than others. For instance, last  week Wednesday was d-day for a few people I know who have fertility issues. We all had appointments and I thought we would all get exceptional news about the day, but it was the exact opposite. NO ONE got good news. You'd have to imagine that with enough days like that, one wouldn't be doing so well.

My news last week was that no follie is growing. I am being weaned off OCP once again, which I'm not too optimistic about. Add to that, the fact that infertility treatments are extremely expensive and you've got one unhappy lady this way.

If I looked at the five stages of grief as:
Denial
Anger
Bargaining
Depression
Acceptance
I'd have to say I am toggling between anger and bargaining on any given day. It makes sense, right, I am grieving the loss of my fertility. And, not only the loss, but the unexpected loss because had this happened at 47, I don't think I'd blink nary an eye. But for it to happen 4 months after my wedding day dead smack in the middle of me saying "I think I am ready for another baby", well, that's just cruel.

I am not ready to be infertile, so every.single.time I see a snot nosed teenager on FB showing her belly pics or talking about how her "hubby", who is usually some equally underaged snot, looks so cute sleeping with their other baby, I just want to throw a chair - ANGER

Whenever I hear about people who don't invest in their children, curse out their children, don't properly nourish their children, etc..., but still manage to have FIVE, yeah... makes me want to punch a hole in a wall - ANGER

But, then, I think... maybe I will do yoga every day - BARGAINING

And juice all of my meals and take shots of wheat grass and go to bed at 7 and do EVERY.SINGLE.THING that other women don't have to do in order to get knocked up - ANGRY BARGAINING

and then... maybe, just maybe, I will get tender boobs, or nauseous after I eat my favorite meal or tired as soon as I wake up and take a test just for the heck of it to find out that we are indeed, against the odds, expecting - DENIAL

So, yeah, as you can see, we've got a long way to go. I have things keeping me busy - but not busy enough. I can only take it day by day. That's all I can do. And one day, I hope to write about my acceptance... in whichever form it takes.

FSH is back up...

I read something once that said you are only as good as your highest FSH level. Gosh, I was hoping it was LOWEST... but no. So, I'm only as good as my FSH level of 100? That level screams... "ovaries? what ovaries?" My ovaries are shriveled up lump of all things unholy. However, I need to find the positive in this. I will say that my left ovary consistently attempts to give me a follie! The right one is the turn-coat. I'm not sure whose team she's on. So, at my appointment on Wednesday, the 8mm follie from last week was long gone, but there was a new 5mm follie on the left side. The right - nada!
I am doubling up OCP for a couple of days, then taking one per day until my next appointment on the 9th. The 9th must be a good day for fertility, because another friend with POF has an appointment that day and my sister has a SONOGRAM... oh yes, she's with child :) It's not public, yet. Neither is this blog, so I can say it here! Ok. So, fingers crossed for everyone on the 9th. Let's bring back some good stories.


My FSH is 33 now. Here's the mail from the clinic after my visit on Wednesday:

Please confirm receipt of this email.Below are your blood results for today:
Estrogen: <L
FSH: 33
LH:14
 p4: 0.5


At this time, the MD has reviewed your results and your instructions are as follows:

Please be aware that since your FSH was unable to stabilize at the lower level once the MD weaned your body off the birth control pill, the MD would like you to begin taking the birth control pills again to bring the levels back down.  Your FSH was at 17 when you last monitored, however today it went back up to 33.  The MD would like to try the birth control suppression again to see if your body will be able to have the levels remain low enough to begin IVF treatment.

Please begin taking two birth control pills daily from today 5/2 until 5/5

Please decrease to ONE birth control pill daily from 5/6 until 5/8


Your next appointment is scheduled for: Wednesday May 9th, 2012 at Columbus Circle.

Please let me know if you have any questions or concerns.
Have a great day!