A while back, read about 4 weeks ago, I stumbled across a FB group for women with POF. I wasn't entirely sure whether or not I wanted to join because not everyone knows about my POF and I certainly didn't need it on my timeline every time I posted to the group! Either way, I thought my sanity has to be worth a little bit more than my pride! I need people who understand what I'm going through and can help me through this - and I want to help others if I can, as well.Either way, I got the message that I was accepted to the closed group yesterday! Naturally, I did the obligatory intro post: Hi, I'm Anika. I have POF and I'm devastated. To my astonishment, people responded. Not that I thought they wouldn't, but it wasn't just "Hi Anika. Welcome!" It was more like "Did you do x? What about Y? You should also try Z... it's worked for a lot of us."
So, a couple of women there mentioned that even after FSH levels elevated into the hundreds, ok 102 and 108, I believe, THEY CONCEIVED. One conceived naturally and had the profile picture to prove it.
Now, I don't mean to go back into the denial stage. I am in 3 stages simultaneously, so to get out of one would be really awesome. However, THERE IS HOPE. Maybe not in my case, but in someone's case, there is hope.
So, one of the women also gave me the website to the NIH. NIH, I LOVE YOU! There is a center, 4 hours drive from my home, that deals specifically with POF. *cue the hallelujah music* I called today and they are accepting patients for September 2012 (which coincides with my law school start date o_O). I am going to do this, though. I owe it to myself and my broken ovaries to get answers.
I will update once I've read through the introductory packet they've ALREADY sent me (talk about efficient).
Here's the link for your perusal. I will update once I take a look through all of the info.
http://poi.nichd.nih.gov/index.html
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